Creating a Minimum Data Set on ageing in sub-Saharan Africa
DOI:
https://doi.org/10.21504/sajg.v9i2.203Abstract
The World Health Organisation, together with representatives of four sub-Saharan African countries (Ghana, South Africa, Tanzania, Zimbabwe) and other stakeholders, launched a project in 1999 to establish a Minimum Data Set on ageing and older persons in Africa. The project focusses on identifying what data are needed to build knowledge on the situation of older Africans and forging the centralised, in-country collation and dissemination of this information. This paper summarises the current state of the project and touches on issues of data availability and quality, while exploring methods for data collection, integration, collation and dissemination.References
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Apt, N.A. 1997. Ageing in Africa. Geneva: World Health Organisation.
Borchelt, M., Vogel, W. & Steinhagen-Thiessen, E. 1999. [The Geriatric Minimum Data Set (Gemidas) of the Federal Association of Clinical Geriatric Facilities e. V. as an instrument for quality assurance in inpatient geriatrics](German). Zeitschrifi fu r Gerontologie und Geriatric, 32(1): 11-23.
Bradshaw, D., Bourne, D., Schneider, M. & Sayed, A. 1995. Mortality patterns of chronic diseases of lifestyle in South Africa. In: Fourie, J. & Steyn, K. (Eds) Chronic diseases of lifestyle in South Africa. MRC Technical Report. Parow: Medical Research Council.
Chandramohan, D., Maude, G.H., Rodrigues, L.C. & Hayes, R.J. 1998, Verbal autopsies for adult deaths: their development and validation in a multicentre study. Tropical Medicine and International Health, 3(6): 436-446.
Charlton, K. 1998. Health, health care and ageing in Africa: challenges and opportunities. Editorial. Southern African Journal of Gerontology, 7(2): 1-3.
Colledge, M.J., 1999. Statistical integration through metadata management. International Statistical Review, 67: 79-98.
Cooper, R.S., Osotimehin, B., Kaufman, J.S. & Forrester, T. 1998. Disease burden in sub-Saharan Africa: what should we conclude in the absence of data? Lancet, 351: 208-210.
Daponte, B.O., Kadane, J.B. & Wolfson, L.J., 1997. Bayesian demography: projecting the Iraqi Kurdish population, 1977-1990. Journal of the American Statistical Association, 92(440): 1256-1267.
Ferreira, M., Mler, V., Prinsloo, F. & Gillis, L.S. 1992. Multidimensional survey of elderly South Africans, 1990 91: key findings. Cape Town: HSRC/UCT Centre for Gerontology.
Forrester, K. 1998. Older people in Tanzania: a research report from HelpAge International. Dar es Salaam: HelpAge International.
Goossen, W.T., Epping, P.J., Van den Heuvel, W.J., Feuth, T., Frederiks, C.M. St Hasman, A, 2000. Development of the Nursing Minimum Data Set for the Netherlands (NMDSN): identification of categories and items. Journal of Advanced Nursing, 31(3): 536-547.
Gorman, M. 1999. Development and the rights of older people. In: Randel, J., German, T. & Ewing, D. (Eds) The ageing and development report: poverty, independence and the world's older people. London: Earthscan Publications, pp. 3-21.
Graham, W.J. & Macfariane, S. 1997. Selecting reproductive health indicators: a guide for district managers. WHO Technical Report, Ref, WHO/RHT/HRP/97.25. Geneva: World Health Organisation.
Harrison, P.F. St Howson, C.P. 1996. The life-span approach to female morbidity and mortality: an application to female health in sub-Saharan Africa. Current Issues in Public Health, 2: 226-231.
Hawes, C Morris, J.N., Phillips, C.D., Fries, B.E., Murphy, K. & Mor, V. 1997. Development of the nursing home Resident Assessment Instrument in the USA. Age & Ageing, 26(suppl 2): 19-25.
Heslop, A. 1999. Poverty and livelihoods in an ageing world. In: Randel, J., German, T. & Ewing, D. (Eds) The ageing and development report: poverty, independence and the world's older people. London: Earthscan Publications, pp. 22-32.
Ikegami, N., Morris, J.N. & Fries, B.E. 1997. Low-care cases in long-term care settings: variation among nations Age & Ageing, 26(suppl 2): 67-71.
Kadane, J.B. & Wolfson, L.J, 1998, Experience in elicitation (with discussion). Journal of the Royal Statistical Society, Series D (The Statistician), 4 7:3-20.
Katsriku, B. 2000. Ageing in Ghana. Paper read in a Workshop on Creating a Minimum Data Set for Research, Policy and Action on Ageing and the Aged in Africa. Harare, Zimbabwe, January 20-22.
Kaufman, J.S., Asuzu, M.C., Rotimi, C.N., Johnson, O.O., Owoaje, E.E. St Cooper, R.S. 1997. The absence of adult mortality data for sub-Saharan Africa: a practical solution. Bulletin of the World Health Organisation, 75(5): 389-395.
Kondo, K.., Shido, K., Kato, T., Ohura, T., Minemawari, Y., Nakagawa, Y., Aso, K., Ohnisbi, Y., Iwasaka, N. St Kawabata, M. 1999. [Evaluation and improvement of medical and nursing service and caregiving for the elderly using MDS. 1. Diagnosis and some problems in dementias.) Nippon Ronen Igakkai Zasshi - Japanese Journal of Geriatrics, 36(9): 631-637.
Madzingira, N. 2000. Ageing in Zimbabwe: a country profile. Paper read in the Workshop on Creating a Minimum Data Set for Research. Policy and Action on Ageing and the Aged in Africa. Harare, Zimbabwe, January 20- 22.
Mirza, N.M., Macharia, W.M., Wafula, E.M., Agwanda, R.O. & Onyango, F.E. 1990. Verbal autopsy: a tool for determining cause of death in a community. East African Medical Journal, 67(10): 693-698.
Mkai, C.P.B, St Ngalinda, 1. 2000. Ageing in the United Republic of Tanzania. Paper read in the Workshop on Creating a Minimum Data Set for Research, Policy and Action on Ageing and the Aged in Africa. Harare, Zimbabwe, January 20-22.
Mohatle, T. & Agyarko de Graft, R. 1999. Contributions of older persons to development: the South African study. London: HelpAge Internationa].
Moss, E.A. 1995. Developing national health information in Australia. Medinfo, 8(pt2): 1636.
Mullan, J.T. 1998. Aging and informal caregiving to people with HIV/AIDS. Research on Ageing, 20(6): 712-738.
Murray, C.J. & Lopez, A.D. 1996. Evidence-based health policy - lessons from the Global Burden of Disease Study. Science, 274(5288): 740-743.
Rantz, M.J., Popejoy, L., Zwygart-Stauffacher, M., Wipke-Tevis, D. & Grando, V.T. 1999. Minimum Data Set and resident assessment instrument. Can using standardized assessment improve clinical practice and outcomes of care? Journal of Gerontological Nursing, 25(6): 35-43.
Ribbe, M.W., Ljunggren, G., Steel, K., Topinkova, E., Hawes, C., Ikegami, N Henrard, J.C. & Jonnson, P.V. 1997. Nursing homes in 10 nations: a comparison between countries and settings. Age & Ageing, 26(suppl. 2): 3-12.
Shafer, J.L. 1997. Analysis of incomplete multivariate data. London: Chapman & Hall.
Timaeus, I. 1997, Age patterns of mortality in sub-Saharan Africa: an initial study of the impact of AIDS. Paper read at the Population Association of America Conference, Washington, DC, March 27-29.
UNAIDS (Joint United Nations Programme on H1V/A1D S). 2000. Report on the global H IV /A ID S epidemic. Electronic report: http:/www.unaids.org/epidemic_update/ report/Epi report.htm
United Nations Population Division. 1999. The world population prospects: the 1998 revision. New York: UNPD.
United States Bureau of the Census (USCB). 2000. International Data Base (IDB). International Program Center, Washington DC. http:/www.census.got ipc/ www/idbnew.html United States Bureau of the Census (USCB). 1999. HIV/AIDS in the developing world. Report WP/98-2. Washington, DC: US Government Printing Office.
United States Bureau of the Census (USCB). 1998. World population profile: 1998. Report WP/98. Washington, DC: US Government Printing Office.
Van den Heever, C. St Booysen, D. 2000. Status of older persons: profiling those South Africans aged 65 years or older. Paper read in the Workshop on Creating a Minimum Data Set for Research, Policy and Action on Ageing and the Aged in Africa. Harare, Zimbabwe, January 20-22.
World Health Organisation (WHO). 1997. Monitoring reproductive health: selecting a short list of national and global indicators, WHO Technical Report, Ref. WHO/RHT/HRP/97.256. Geneva: World Health Organisation.
Wing, J.K., Beevor, A.S., Curtis, R.H., Park, S.B., Hadden, S. & Bums, A. 1998. Health of the Nation Outcome Scales (HoNOS). Research and development. British Journal of Psychiatry, 172: 11-18. 23.
Apt, N.A. 1997. Ageing in Africa. Geneva: World Health Organisation.
Borchelt, M., Vogel, W. & Steinhagen-Thiessen, E. 1999. [The Geriatric Minimum Data Set (Gemidas) of the Federal Association of Clinical Geriatric Facilities e. V. as an instrument for quality assurance in inpatient geriatrics](German). Zeitschrifi fu r Gerontologie und Geriatric, 32(1): 11-23.
Bradshaw, D., Bourne, D., Schneider, M. & Sayed, A. 1995. Mortality patterns of chronic diseases of lifestyle in South Africa. In: Fourie, J. & Steyn, K. (Eds) Chronic diseases of lifestyle in South Africa. MRC Technical Report. Parow: Medical Research Council.
Chandramohan, D., Maude, G.H., Rodrigues, L.C. & Hayes, R.J. 1998, Verbal autopsies for adult deaths: their development and validation in a multicentre study. Tropical Medicine and International Health, 3(6): 436-446.
Charlton, K. 1998. Health, health care and ageing in Africa: challenges and opportunities. Editorial. Southern African Journal of Gerontology, 7(2): 1-3.
Colledge, M.J., 1999. Statistical integration through metadata management. International Statistical Review, 67: 79-98.
Cooper, R.S., Osotimehin, B., Kaufman, J.S. & Forrester, T. 1998. Disease burden in sub-Saharan Africa: what should we conclude in the absence of data? Lancet, 351: 208-210.
Daponte, B.O., Kadane, J.B. & Wolfson, L.J., 1997. Bayesian demography: projecting the Iraqi Kurdish population, 1977-1990. Journal of the American Statistical Association, 92(440): 1256-1267.
Ferreira, M., Mler, V., Prinsloo, F. & Gillis, L.S. 1992. Multidimensional survey of elderly South Africans, 1990 91: key findings. Cape Town: HSRC/UCT Centre for Gerontology.
Forrester, K. 1998. Older people in Tanzania: a research report from HelpAge International. Dar es Salaam: HelpAge International.
Goossen, W.T., Epping, P.J., Van den Heuvel, W.J., Feuth, T., Frederiks, C.M. St Hasman, A, 2000. Development of the Nursing Minimum Data Set for the Netherlands (NMDSN): identification of categories and items. Journal of Advanced Nursing, 31(3): 536-547.
Gorman, M. 1999. Development and the rights of older people. In: Randel, J., German, T. & Ewing, D. (Eds) The ageing and development report: poverty, independence and the world's older people. London: Earthscan Publications, pp. 3-21.
Graham, W.J. & Macfariane, S. 1997. Selecting reproductive health indicators: a guide for district managers. WHO Technical Report, Ref, WHO/RHT/HRP/97.25. Geneva: World Health Organisation.
Harrison, P.F. St Howson, C.P. 1996. The life-span approach to female morbidity and mortality: an application to female health in sub-Saharan Africa. Current Issues in Public Health, 2: 226-231.
Hawes, C Morris, J.N., Phillips, C.D., Fries, B.E., Murphy, K. & Mor, V. 1997. Development of the nursing home Resident Assessment Instrument in the USA. Age & Ageing, 26(suppl 2): 19-25.
Heslop, A. 1999. Poverty and livelihoods in an ageing world. In: Randel, J., German, T. & Ewing, D. (Eds) The ageing and development report: poverty, independence and the world's older people. London: Earthscan Publications, pp. 22-32.
Ikegami, N., Morris, J.N. & Fries, B.E. 1997. Low-care cases in long-term care settings: variation among nations Age & Ageing, 26(suppl 2): 67-71.
Kadane, J.B. & Wolfson, L.J, 1998, Experience in elicitation (with discussion). Journal of the Royal Statistical Society, Series D (The Statistician), 4 7:3-20.
Katsriku, B. 2000. Ageing in Ghana. Paper read in a Workshop on Creating a Minimum Data Set for Research, Policy and Action on Ageing and the Aged in Africa. Harare, Zimbabwe, January 20-22.
Kaufman, J.S., Asuzu, M.C., Rotimi, C.N., Johnson, O.O., Owoaje, E.E. St Cooper, R.S. 1997. The absence of adult mortality data for sub-Saharan Africa: a practical solution. Bulletin of the World Health Organisation, 75(5): 389-395.
Kondo, K.., Shido, K., Kato, T., Ohura, T., Minemawari, Y., Nakagawa, Y., Aso, K., Ohnisbi, Y., Iwasaka, N. St Kawabata, M. 1999. [Evaluation and improvement of medical and nursing service and caregiving for the elderly using MDS. 1. Diagnosis and some problems in dementias.) Nippon Ronen Igakkai Zasshi - Japanese Journal of Geriatrics, 36(9): 631-637.
Madzingira, N. 2000. Ageing in Zimbabwe: a country profile. Paper read in the Workshop on Creating a Minimum Data Set for Research. Policy and Action on Ageing and the Aged in Africa. Harare, Zimbabwe, January 20- 22.
Mirza, N.M., Macharia, W.M., Wafula, E.M., Agwanda, R.O. & Onyango, F.E. 1990. Verbal autopsy: a tool for determining cause of death in a community. East African Medical Journal, 67(10): 693-698.
Mkai, C.P.B, St Ngalinda, 1. 2000. Ageing in the United Republic of Tanzania. Paper read in the Workshop on Creating a Minimum Data Set for Research, Policy and Action on Ageing and the Aged in Africa. Harare, Zimbabwe, January 20-22.
Mohatle, T. & Agyarko de Graft, R. 1999. Contributions of older persons to development: the South African study. London: HelpAge Internationa].
Moss, E.A. 1995. Developing national health information in Australia. Medinfo, 8(pt2): 1636.
Mullan, J.T. 1998. Aging and informal caregiving to people with HIV/AIDS. Research on Ageing, 20(6): 712-738.
Murray, C.J. & Lopez, A.D. 1996. Evidence-based health policy - lessons from the Global Burden of Disease Study. Science, 274(5288): 740-743.
Rantz, M.J., Popejoy, L., Zwygart-Stauffacher, M., Wipke-Tevis, D. & Grando, V.T. 1999. Minimum Data Set and resident assessment instrument. Can using standardized assessment improve clinical practice and outcomes of care? Journal of Gerontological Nursing, 25(6): 35-43.
Ribbe, M.W., Ljunggren, G., Steel, K., Topinkova, E., Hawes, C., Ikegami, N Henrard, J.C. & Jonnson, P.V. 1997. Nursing homes in 10 nations: a comparison between countries and settings. Age & Ageing, 26(suppl. 2): 3-12.
Shafer, J.L. 1997. Analysis of incomplete multivariate data. London: Chapman & Hall.
Timaeus, I. 1997, Age patterns of mortality in sub-Saharan Africa: an initial study of the impact of AIDS. Paper read at the Population Association of America Conference, Washington, DC, March 27-29.
UNAIDS (Joint United Nations Programme on H1V/A1D S). 2000. Report on the global H IV /A ID S epidemic. Electronic report: http:/www.unaids.org/epidemic_update/ report/Epi report.htm
United Nations Population Division. 1999. The world population prospects: the 1998 revision. New York: UNPD.
United States Bureau of the Census (USCB). 2000. International Data Base (IDB). International Program Center, Washington DC. http:/www.census.got ipc/ www/idbnew.html United States Bureau of the Census (USCB). 1999. HIV/AIDS in the developing world. Report WP/98-2. Washington, DC: US Government Printing Office.
United States Bureau of the Census (USCB). 1998. World population profile: 1998. Report WP/98. Washington, DC: US Government Printing Office.
Van den Heever, C. St Booysen, D. 2000. Status of older persons: profiling those South Africans aged 65 years or older. Paper read in the Workshop on Creating a Minimum Data Set for Research, Policy and Action on Ageing and the Aged in Africa. Harare, Zimbabwe, January 20-22.
World Health Organisation (WHO). 1997. Monitoring reproductive health: selecting a short list of national and global indicators, WHO Technical Report, Ref. WHO/RHT/HRP/97.256. Geneva: World Health Organisation.
Wing, J.K., Beevor, A.S., Curtis, R.H., Park, S.B., Hadden, S. & Bums, A. 1998. Health of the Nation Outcome Scales (HoNOS). Research and development. British Journal of Psychiatry, 172: 11-18. 23.
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